Legislature(2013 - 2014)CAPITOL 106

02/05/2013 03:00 PM House HEALTH & SOCIAL SERVICES


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03:07:59 PM Start
03:09:07 PM HB88
03:53:34 PM Adjourn
* first hearing in first committee of referral
+ teleconferenced
= bill was previously heard/scheduled
*+ HB 88 STATUTORY REFS TO MENTAL RETARDATION TELECONFERENCED
Moved CSHB 88(HSS) Out of Committee
+ Bills Previously Heard/Scheduled TELECONFERENCED
           HB 88-STATUTORY REFS TO MENTAL RETARDATION                                                                       
                                                                                                                                
3:09:07 PM                                                                                                                    
                                                                                                                                
CHAIR HIGGINS announced that the  only order of business would be                                                               
HOUSE  BILL   NO.  88,  "An   Act  changing  the   terms  'mental                                                               
retardation'  and  'mentally  retarded,'  and  making  conforming                                                               
changes, in Alaska Statutes."                                                                                                   
                                                                                                                                
3:09:34 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  KELLER  moved  to adopt  the  proposed  committee                                                               
substitute (CS) for HB 88,  labeled 28-LS0400\U, Mischel, 2/5/13,                                                               
as the  working document.   There being  no objection, it  was so                                                               
ordered.                                                                                                                        
                                                                                                                                
3:09:58 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  CHARISSE   MILLETT,  Alaska   State  Legislature,                                                               
stated that both  proposed HB 88 and the proposed  CS, Version U,                                                               
would change the  use of the clinical  terms "mental retardation"                                                               
and "mentally retarded"  in Alaska statutes.   She declared that,                                                               
as these have  now become derogatory terms, proposed  HB 88 would                                                               
change this language to a  more inclusive and respectful language                                                               
for people with  disabilities.  She referenced proposed  HB 88 as                                                               
the "people first"  bill, and pointed out that  this language had                                                               
been changed in 40 other states.                                                                                                
                                                                                                                                
3:10:59 PM                                                                                                                    
                                                                                                                                
VASILIOS  GIALOPSOS,  Staff,   Representative  Charisse  Millett,                                                               
Alaska  State Legislature,  explained  that  the two  fundamental                                                               
changes contained  in the proposed committee  substitute, Version                                                               
U, were on page 14 and page  15.  Directing attention to page 14,                                                               
line 23,  he stated that  this would  clarify that the  intent of                                                               
the rule of construction by the  legislator was not to change the                                                               
diagnosis  for "intellectual  or developmental  disabilities," or                                                               
the conditions  of competency before  courts.  He  explained that                                                               
"this is a change of labels,"  as the intent of the original term                                                               
had now  become a derogation.   He emphasized that Version  U did                                                               
not change or  constrict the provisions of state  services or the                                                               
scope of the Department of Law.   He moved on to explain page 14,                                                               
line 29, which  dealt with the changes to language  in the Alaska                                                               
Administrative Codes, and  clarified that there would  not be any                                                               
fiscal burden.                                                                                                                  
                                                                                                                                
3:14:06 PM                                                                                                                    
                                                                                                                                
CHAIR HIGGINS,  in response to  Mr. Gialopsos, asked for  a broad                                                               
overview of the proposed bill.                                                                                                  
                                                                                                                                
MR. GIALOPSOS explained  that proposed HB 88  identified the term                                                               
"mentally retarded"  in the Alaska statutes  and substituted that                                                               
term  with "intellectual  and  developmental  disabilities."   He                                                               
pointed  out  that  nothing  was   changed  with  regard  to  the                                                               
conditions or standards  of competency.  He  emphasized that only                                                               
the label would be changed.                                                                                                     
                                                                                                                                
3:15:10 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  PRUITT,   referring  to   the  analysis   of  the                                                               
Department of Health and Social  Services fiscal note prepared by                                                               
Melissa Stone, [Included  in members' packets] asked  if this had                                                               
been addressed by the proposed CS, Version U.                                                                                   
                                                                                                                                
REPRESENTATIVE MILLETT  replied that the new  regulation language                                                               
in Version U did address this  fiscal note analysis, and would be                                                               
reflected in a new fiscal note.                                                                                                 
                                                                                                                                
3:16:47 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE   SEATON    asked   if   the    replacement   term                                                               
"intellectual and developmental  disabilities" would require both                                                               
disabilities to qualify, as it did not read "and/or".                                                                           
                                                                                                                                
REPRESENTATIVE MILLETT  replied that only the  term was replaced,                                                               
and it  did not  expand the  definition, or  change the  civil or                                                               
criminal code.   She  stated that there  was not  any implication                                                               
for proof.                                                                                                                      
                                                                                                                                
3:18:21 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE SEATON asked  for the Department of Law  to put on                                                               
the record  that it  was not  necessary to fit  into both  of the                                                               
categories.                                                                                                                     
                                                                                                                                
3:19:06 PM                                                                                                                    
                                                                                                                                
WILDA LAUGHLIN,  Special Assistance, Office of  the Commissioner,                                                               
Department of  Health and Social Services  (DHSS), clarified that                                                               
Version U would "zero out both of our fiscal notes."                                                                            
                                                                                                                                
3:20:06 PM                                                                                                                    
                                                                                                                                
STACIE  KRALY,  Chief  Assistant  Attorney  General  -  Statewide                                                               
Section  Supervisor,  Human   Services  Section,  Civil  Division                                                               
(Juneau),  Department of  Law (DOL),  in response  to an  earlier                                                               
question by  Representative Seaton,  said that  "historically the                                                               
phrase  'mental  retardation'  would encompass  both  individuals                                                               
with mental and developmental disabilities."   She clarified that                                                               
this substitution of  term was not meant to expand  or change the                                                               
definition, and would encompass both conditions.                                                                                
                                                                                                                                
3:21:02 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  SEATON asked  to clarify  that, as  the term  had                                                               
previously  covered intellectual  or  developmental,  it was  not                                                               
necessary  to   now  have   both  intellectual   and  development                                                               
disabilities in order to qualify.                                                                                               
                                                                                                                                
MS. KRALY, in  response, opined that this was simply  a switch of                                                               
phrase.                                                                                                                         
                                                                                                                                
3:22:05 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  SEATON  asked to  clarify  that  this was  not  a                                                               
contraction.   He noted that having  this on the record  was very                                                               
important for legislative history.                                                                                              
                                                                                                                                
3:22:26 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  TARR, directing  attention to  the fiscal  notes,                                                               
asked if a fiscal note was  necessary from the Division of Senior                                                               
and Disabilities Services in DHSS.                                                                                              
                                                                                                                                
MS. LAUGHLIN replied that there was not a cost to that division.                                                                
                                                                                                                                
REPRESENTATIVE TARR asked  if there was a cost  to the Governor's                                                               
Council on Disabilities & Special Education.                                                                                    
                                                                                                                                
MS. LAUGHLIN, in response, said that there was not a cost.                                                                      
                                                                                                                                
3:22:55 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE   KELLER   asked   to  clarify   that   "physical"                                                               
disabilities were not included in this bill.                                                                                    
                                                                                                                                
MS. KRALY expressed her agreement.                                                                                              
                                                                                                                                
3:23:28 PM                                                                                                                    
                                                                                                                                
CHAIR HIGGINS opened public testimony.                                                                                          
                                                                                                                                
3:24:04 PM                                                                                                                    
                                                                                                                                
MILLIE RYAN, Executive Director,  REACH, Inc., stated that REACH,                                                               
and  the 400  individuals  with disabilities  that REACH  served,                                                               
strongly supported  the proposed bill.   She said  that replacing                                                               
hurtful  language was  more than  semantics.   She shared  that a                                                               
change for  the way  we talk  to people was  a first  step toward                                                               
valuing  them as  contributing  members of  the  community.   She                                                               
offered  her  belief  that  hurtful   language  could  limit  the                                                               
expectations that people  had for themselves.   She declared that                                                               
many  more  federal  and  state  agencies  were  embracing  these                                                               
changes in language.                                                                                                            
                                                                                                                                
3:25:26 PM                                                                                                                    
                                                                                                                                
CHRIS BRENNER  shared that  he was  23 years old  and had  been a                                                               
client at REACH since he was  6 years old and labeled as mentally                                                               
retarded.   He stated that since  that time he had  been made fun                                                               
of and  treated differently.   He expressed that the  label upset                                                               
him, and  that he  did not like  the word.   He pointed  out that                                                               
most people associated the label  "mentally retarded" as dumb, or                                                               
not as  smart or capable as  everyone else.  He  declared that he                                                               
was as capable  of success as others, noting that  he worked full                                                               
time,  paid rent  and taxes,  and was  his own  conservator.   He                                                               
shared that most of his friends  felt judged and looked down upon                                                               
because of  this label.   He  strongly urged  for this  change in                                                               
terms, and he stated:                                                                                                           
                                                                                                                                
     It will  make people  feel better about  themselves, it                                                                    
     will make it so that  some younger people will not have                                                                    
     to grow up  with this label, and feel judged.   I'm not                                                                    
     dumb,  my friends  aren't dumb.    I'm independent  and                                                                    
     this word  makes people feel demeaned  and that they're                                                                    
     not independent.   This word  is wrong and it  needs to                                                                    
     be changed, so we can change peoples' lives.                                                                               
                                                                                                                                
3:27:43 PM                                                                                                                    
                                                                                                                                
KIM  CHAMPNEY,  President,   Alaska  Association  on  Development                                                               
Disabilities  (AADD), reported  that  AADD  represented about  40                                                               
provider   agencies  in   Alaska.     She   declared  that   AADD                                                               
"wholeheartedly" supported proposed  HB 88.  She  noted that AADD                                                               
already used this language with the provider agencies.                                                                          
                                                                                                                                
3:28:52 PM                                                                                                                    
                                                                                                                                
ERIC  GEBHARDT, Chair,  Governor's  Council  on Disabilities  and                                                               
Special Education,  explained that the Council  advised the state                                                               
on   issues   that   affected  individuals   with   developmental                                                               
disabilities.   He declared that  the mission of the  Council was                                                               
to  create change  that would  improve the  lives of  individuals                                                               
with disabilities.   He  declared that  the Council  supported HB
88.   He  affirmed  that language  could be  a  powerful tool  to                                                               
inspire,   motivate,   and  uplift.      He   pointed  out   that                                                               
"retardation"  was   used  as  an   insult  and  as   a  negative                                                               
stereotype.    He  reported  that  "mental  retardation"  was  an                                                               
example for  the negative  evolution of  a word,  as it  had been                                                               
created  to replace  other negative  stereotype  words which  had                                                               
characterized and  insulted people.   He  asked the  committee to                                                               
"remember that  as leaders you  can also influence  policies that                                                               
will eliminate stereotypes that determine  where a person will be                                                               
educated,   encourage   high   expectations  of   students   with                                                               
disabilities, and  eliminate barriers  to graduation."   He noted                                                               
that  many  states  had  changed  their  statutes  and  were  now                                                               
replacing "old negative language" with "people first language."                                                                 
                                                                                                                                
3:33:25 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE TARR  asked if the Council  had outreach resources                                                               
to educate students about the importance of language.                                                                           
                                                                                                                                
MR. GEBHARDT,  in response, said  that there was the  capacity to                                                               
communicate  with  organizations, and  the  Council  did help  to                                                               
create,  though  he  was  unsure  if  there  were  resources  for                                                               
printing and distribution.                                                                                                      
                                                                                                                                
3:34:51 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  TARR declared  that she  would like  to see  more                                                               
outreach for change.                                                                                                            
                                                                                                                                
3:35:07 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  REINBOLD suggested  that  this could  be tied  in                                                               
with the anti-bullying initiatives.                                                                                             
                                                                                                                                
MR. GEBHARDT  voiced his agreement  that negative language  was a                                                               
form  of bullying.   He  mentioned that  student governments  had                                                               
also discussed elimination of the term "retardation" in schools.                                                                
                                                                                                                                
3:36:28 PM                                                                                                                    
                                                                                                                                
RICK NELSON,  Vice Chair, Governor's Council  on Disabilities and                                                               
Special Education,  offered his personal  story and said  that he                                                               
supported HB 88  "with a passion."   He shared that, as  he had a                                                               
developmental  disability, he  had always  been teased,  made fun                                                               
of, and  called retarded.  He  declared that he had  always tried                                                               
to fight  the battles to not  be called that.   He clarified that                                                               
he was a  very intellectual person with a disability,  and he did                                                               
not  want  to be  labeled  as  something that  he  was  not.   He                                                               
announced  that  he  was graduating  from  University  of  Alaska                                                               
Anchorage (UAA) in May, with a  grade point average of 3.2, and a                                                               
Bachelor's degree in business administration  and management.  He                                                               
endorsed  the   change  of  term   from  mental   retardation  to                                                               
intellectual and developmental disabilities.                                                                                    
                                                                                                                                
3:40:49 PM                                                                                                                    
                                                                                                                                
KALEENE  LAMB,  Wall  Busters   Advocacy  Group,  Access  Alaska,                                                               
offered her personal  story, and shared that she was  teased as a                                                               
child.  She  expressed her support for HB 88,  so that kids would                                                               
not have  to go through  this same  teasing.  She  reflected that                                                               
she could not go to school, and  it took her "a long time just to                                                               
get where  I'm at now."   She  acknowledged that although  it was                                                               
just  a label,  and she  expressed  her dislike  for labels,  she                                                               
would appreciate a change of this label.                                                                                        
                                                                                                                                
3:42:35 PM                                                                                                                    
                                                                                                                                
CAROLE  ANDERSON, Chair,  Challenge  Alaska  Board of  Directors,                                                               
affirmed that  language was  a powerful  tool that  could inspire                                                               
and motivate,  or it  could isolate,  bully, and  cause emotional                                                               
damage.   She pointed to  the negative influences  and associated                                                               
stigma from the term "retardation."   She shared a quote:  "words                                                               
are  a form  of  action,  capable of  influencing  change."   She                                                               
reported  that the  generalized term,  "mental retardation,"  was                                                               
characterized   as   having   sufficiently   impaired   cognitive                                                               
function,  and historically  defined as  having an  IQ below  70.                                                               
She referred  to the negative  word evolution, or  the "euphemism                                                               
treadmill," which  she defined as  the eventual use as  an insult                                                               
for any word used to describe  a condition.  She pointed out that                                                               
the term "mental retardation" was  now recognized as disparaging,                                                               
and   the  term   "intellectual  disability"   or  intellectually                                                               
challenged" was  now preferred.   She  reported that  many states                                                               
were  now using  "people  first" language  for  new or  rewritten                                                               
statutes, and she requested that Alaska follow this lead.                                                                       
                                                                                                                                
3:46:38 PM                                                                                                                    
                                                                                                                                
MS. ANDERSON, in  response to Representative Tarr,  said that she                                                               
supported proposed  HB 88, and  she asked (indisc) if  Rosa's Law                                                               
was an inspiration for the proposed bill.                                                                                       
                                                                                                                                
3:48:12 PM                                                                                                                    
                                                                                                                                
CHAIR HIGGINS closed public testimony.                                                                                          
                                                                                                                                
3:48:30 PM                                                                                                                    
                                                                                                                                
The committee took a brief at-ease.                                                                                             
                                                                                                                                
3:50:38 PM                                                                                                                    
                                                                                                                                
CHAIR HIGGINS called the committee back to order.                                                                               
                                                                                                                                
REPRESENTATIVE PRUITT  asked to confirm that  the upcoming fiscal                                                               
notes would address Version U.                                                                                                  
                                                                                                                                
MS.  LAUGHLIN, in  response to  Representative Pruitt,  confirmed                                                               
that Version U would create zero fiscal notes.                                                                                  
                                                                                                                                
3:51:49 PM                                                                                                                    
                                                                                                                                
REPRESENTATIVE  KELLER  moved  to  report CSHB  88,  Version  28-                                                               
LS0400\U,  Mischel,  2/5/13,  out of  committee  with  individual                                                               
recommendations and  the accompanying  zero fiscal notes.   There                                                               
being no objection, CSHB 88(HSS)  was moved from the House Health                                                               
and Social Services Standing Committee.                                                                                         

Document Name Date/Time Subjects
HB088 Sectional Analysis - Ver A.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Sponsor Statement.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Ver A.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Fiscal Note-DCCED-CBPL-02-01-13.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Fiscal Note-EED-TLS-2-1-13.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Letter of Support - ACLU 2013-02-04.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Fiscal Note-DHSS-API-2-4-13.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Fiscal Note-DHSS-ASS-2-2-13.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Letter of Support - DLC 2013-02-05.pdf HHSS 2/5/2013 3:00:00 PM
HB 88
HB088 Draft Proposed CS Ver U.pdf HHSS 2/5/2013 3:00:00 PM
HB 88